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Global NAAION Support Hub

International non-profit organization to support NAAION (also called NAION or eye stroke) patients, family, doctors and researchers (site under construction)

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How do NAAION eyes look like

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Drusen (calcifications) at optic nerve head – Photo title:: OU (=both eyes) Stereo Pair Optic Disc Drusen. Photo by courtesy of retinagallery.com, photographed by Marissa Scherf of New England Retina Associates

Photo taken by SD-OCT (optical coherence tomography) device. Diagnosis: Acute non arteritic anterior ischemic optic neuropathy. Location: left eye Patient: 66 yer old woman Symptoms and background: spot in central vision in left eye started about 1 week ago since then it is not changing. Prior to that the vision was good in the left eye. Vision was the same in the two eyes. Patient had a few little floaters recently. She had ECCE 4-5 years ago and got the crystal lens (expensive lenses). She’s disappointed that the vision is acting up now in one eye. Just moved from Del Ray Beach. She denies headache, jaw claudications, fevers, malaise. No pain behind eyes and no pain on eye movement. Visual acuity and IOP: OD: sc20/25 NscJ5 OS: sc20/200 PHNI Nsc20/800 IOP: TP OD: 14 OS: 13 Photo by courtesy of retinagallery.com

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Find Us

(TEMPORARY) MAILING ADDRESS
Global NAAION Support Hub
(att: Peter Leeflang)
2637 E Atlantic Blvd
#1087
33062 FL Pompano Beach
USA

(TEMPORARY) PHONE
+1 (603) 635 4911

E-MAIL
info @ naaion.org

About This Site

This is the website of the Global NAAION Support Hub, an internationally operating startup organization originating from a currently 870+ members patient and family support group on Facebook. Our main goal is to facilitate better outcomes for the quite rare eye disease called NAAION (non-arteritic anterior ischemic optic neuropathy), which shall be reflected in less partial or full blindness, and in the future even a cure, so vision restoration for NAAION patients.

Disclaimer: Any suggestions we share here are not medical advice but suggestions provided by fellow patients who care and who share their own experiences or the data they have found published (which is always referenced). Apart from consulting fellow patients and studies published online (verify that they are valid so objective), also check with your physicians, before you make your final decision on your health care. If it becomes too complex, consider also consulting an independent (so not hospital affiliated) professional patient advocate.

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