INITIAL GOAL OF DONATIONS
Initially we are seeking donations worldwide to set up a formal bootstrap, so low overhead, startup organization, a foundation. It is to be manned by both volunteers and paid staff, that can operate internationally . Their task will be to make our rather unknown disease more visible. They will also encourage better test and treatment standards, as well as stimulate research.
We still need to determine the country of registration of the foundation. The same is the case with the supervisory board and the management team.
PROFESSIONALIZE WEBSITE
The foundation will also need to create an more professional informative well maintained website. Its purpose is to keep patients, family and doctors informed on the latest about NAAION. For the same reasons we will be organizing webinars, live local meetings and conferences.
ULTIMATE GOAL: BETTER OUTCOMES
All these activities we are focusing on achieving better care outcomes for us patients. Our ultimate purpose is to achieve less cases of full or partial blindness. We also are stimulating finding a future cure, like in the area of optic nerve regeneration. A cure is not an IF anymore, but a WHEN.
WHEN CAN YOU DONATE?
Very soon we will announce more details about this ‘startup foundation’ drive and the activation of the ‘donate’ button.
