INITIAL GOAL OF DONATIONS
Initially we are seeking donations worldwide to set up a formal bootstrap, so low overhead, startup organization, a foundation. It is to be manned by both volunteers and paid staff, that can operate internationally . Their task will be to make our rather unknown disease more visible. They will also encourage better test and treatment standards, as well as stimulate research.
We still need to determine the country of registration of the foundation. The same is the case with the supervisory board and the management team.