This is the website of the Global NAAION Support Hub, an internationally operating startup organization originating from a currently numbering 870+ members patient and family support group on Facebook. Our main goal is to facilitate better outcomes for the quite rare eye disease called NAAION (non-arteritic anterior ischemic optic neuropathy) or more loosely ‘eye stroke’, which shall be reflected in less partial or full blindness, and in the future even a cure, so vision restoration for NAAION patients.
Disclaimer: Any suggestions we share here are not medical advice but suggestions provided by fellow patients who care and who share their own experiences or the data they have found published (which is always referenced). Apart from consulting fellow patients and studies published online (verify that they are valid so objective), also check with your physicians, before you make your final decision on your health care. If it becomes too complex, consider also consulting an independent (so not hospital affiliated) professional patient advocate.
English