INTRODUCTION
Welcome to our internationally operating startup soon to be incorporated non-profit organization’s website for NAAION – also called NAION or eye stroke – (non-arteritic anterior ischemic optic neuropathy) patients and family, as well as for physicians and researchers involved, that is under construction.
We have started this to help put a stop to this life disturbing always unexpectedly sudden disease that is getting so many fully or partially blind in one or both eyes. Even better, we plan to stimulate establishing care proper standards to lift the current care chaos to a higher levels, promote creating early preventive tests and finding a cure for NAAION Here starts the road to better outcomes for NAAION patients and their family and greater progress for researchers in testing and treating NAAION.
The coming non-profit NAAION Foundation has already started a successful initial funding round to fund its formation and there are several candidate members of the initial board getting ready for the first meeting to form the foundation.
Meanwhile you will find here already:
1. Our main international English-speaking closed (members only) NAAION (NAION or eye stroke) support group for patients and family at
http://www.facebook.com/groups/naaion/
2. Our Twitter page @naaion at
https://www.twitter.com/naaion/
3. Our YouTube channel with patients stories etc. (soon to be published) is at
https://www.youtube.com/channel/UCmlRPW1D8aX1VQunBp5CzPg